Shine a Light NF Walk is the signature fundraising event of the Children’s Tumor Foundation (CTF), bringing neurofibromatosis (NF) out of the shadows and inspiring the community to come together to raise critical funds for NF research.
NF is a genetic disorder that causes tumors to grow on nerves throughout the body and affects one in 3,000 people of all populations. Today, there is no cure for NF.
Shine a Light NF Walk | Children’s Tumor Foundation (ctf.org)
This year’s event (2024) is being held on September 7th at Rose Tree Park in Media, Pa.
Interested in attending? Register for free.
Other walks are being held throughout the country on various dates.
Please consider sponsoring me
Stephen Velott: Donation page
Sponsored raffle prize #1 -2024 prize info coming soon.
(2023 prize, new this year)
Set includes: 6″ vegetable knife, spatula spreader, and 2-3/4″ pairing knife.
-Engraved with the Children’s Tumor Foundation logo (excluding pairing knife)
Made in the USA
Guaranteed forever
Sponsored raffle prize #2 -2024 prize info coming soon.
(2023 prize. Same as 2021 and 2022)
Set includes: Cultivator, Weeder, Transplanting Trowel, and Garden Trowel.
– Transplanting and Garden Trowels are engraved with the Children’s Tumor Foundation logo.
Guaranteed forever
Cupid’s Undie Run is a fun run in which brightly adorned, underwear-clad team members race outdoors for one mile on Valentine’s Day Weekend. Launched in 2010, Cupid’s has rapidly expanded to cities across the United States and abroad, and has raised millions for NF research.
100% of the net proceeds benefit the Children’s Tumor Foundation.
On February TBD, 2025, I will be participating in the Philadelphia event at Xfinity Live!. I will also be participating in the Wilmington, DE event being held on February 22, 2025 at The Queen.
Other events are being held throughout the country on various Saturdays in February.
Interesting in participating? Register here
Please consider sponsoring us
Stephen Velott (Philadelphia): Donation Page
Christine Velott (Philadelphia) Donation Page (coming soon)
Stephen Velott (Wilmington): Donation Page
“Chasing Butterflies: The Walk for Turner Syndrome,” is an annual walk event held across the country to raise funds and awareness. Turner Syndrome (TS) is a chromosomal disorder that affects only females, impacting everything from height to hearing to learning. TS is caused by complete or partial absence of the second sex chromosome.
2024/2025 TBA
The Children’s Tumor Foundation NF Endurance Team gives participants the opportunity to run, bike, or swim in endurance events across the country. By joining our team you can raise awareness and research funds to find a cure for NF (neurofibromatosis), while receiving training from experienced coaches, entry into a variety of races, fundraising support, and inspiration from our NF Heroes.
CTF NF Endurance Team | Children’s Tumor Foundation (ctf.org)
I ran the Little Rock Marathon on March 6, 2022 with CTF’s NF Endurance Team. 2024 is TBA.
Please consider sponsoring me:
Stephen Velott: Donation Page – Coming soon
Christine Velott: Donation Page – Coming soon